Today’s New York Times Magazine ran a piece by Princeton bioethics professor Peter Singer to honor Charleston lawyer Harriet McBryde Johnson, who died in June. Singer, a leader in the animal rights movement, and Johnson, an activist with a national profile in the disability community, sparred over the years in public forums and in private emails, all the while maintaining a mutual respect.
Johnson was a longtime member of the SC Progressive Network, and was honored with the organization’s Thunder and Lightning Award in 2004. To read an earlier post recognizing Johnson’s death, click here.
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By PETER SINGER
New York Times Magazine
I met Harriet McBryde Johnson in the spring of 2001, when I was giving a lecture at the College of Charleston. Her brand of Southern etiquette prescribed that if you’re not prepared to shoot on sight, you have to be prepared to shake hands, so when I held out mine, she reached up from her powered wheelchair and took it with the three working fingers on her right hand. She added that she was attending my lecture as a supporter of Not Dead Yet, the disability rights organization that a year and a half earlier blockaded Princeton University’s Nassau Hall in protest against my appointment as a professor of bioethics. I told her I looked forward to an interesting exchange.
My lecture, “Rethinking Life and Death,” was a defense of the position that had aroused such vehement opposition. I pointed out that physicians routinely withdraw life support from severely disabled newborns, and I argued that this is not very different from allowing parents to decide, in consultation with their doctors, to end the life of a baby when the child has disabilities so serious that the family believes this will be best for the child or for the family as a whole.
When I finished, Johnson, who was born with a muscle-wasting disease, spoke up. I was saying, she pointed out, that her parents should have been permitted to kill her shortly after her birth. But she was now a lawyer, enjoying her life as much as anyone. It is a mistake, she said, to believe that having a disability makes life less worth living.
Our exchange of views continued for a few minutes in the lecture theater, and by e-mail afterward. Years later, when I read her autobiographical book, “Too Late to Die Young,” I wasn’t surprised to see “arguing hard” listed among the pleasures of her life.
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